So, here we are three and a half years after my last post, on CdLS Awareness Day.
Ben is now 8 years old.
We can hardly believe it ourselves.
He is doing remarkably well. He still continues to enjoy exceptionally good health. He is still a little guy, and weighs about 30 lbs.
He is eating all his daytime meals orally with a spoon (no more Nuk brush!), and he can drink liquids from a cup. He is not close to being able to feed himself, however, and he sometimes plays games with the person attempting to feed him. I have to say that he tends to eat beautifully for me. What can I say? He loves his Mom. 🙂 He still gets some supplemental formula tube feeds overnight.
He is still not walking, but he has learned how to get into a kneeling position and can pull himself up to furniture.
He still does not talk, but he hums and vocalizes a lot! He has a very sunny disposition…most of the time.
It amazes me that he never seems to stop learning.
Life is good!