Ben is just over 15 lbs now, and continues to be very healthy. He has global developmental delays, and his motor skills are just about at the 5 or 6 month level. We reviewed his therapies: he gets physical therapy once a week, speech therapy once every other week and occupational therapy twice a week. Ben is still on a mixture of Nutren Junior and infant formula; this transition has definitely gone a lot slower than we anticipated.
This visit was fairly routine – I think this is the first time we didn’t have much to say, which is a good thing. Ben got his 2nd hepatitis A shot and his 2nd Synagis. We next see the pediatrician in 3 months mainly to track his growth and adjust his tube feeds if necessary.
I wanted Ben to see the developmental pediatrician at the university hospital where he gets all his specialty care. We weren’t able to get him in, mainly because their practice is full, and partly because they deal mostly with kids who have ADHD and autism, and they assumed that we wanted Ben to be seen there for behavior management (which of course isn’t the case…yet). However, the clinical psychologist from her office who helps with developing educational goals is willing to see him – we’ll probably make an appointment for that in another year or so. This is one of the more frustrating things about living in such a rural area – sometimes it’s difficult to get the appropriate care for Ben within a reasonable distance from home. I suppose we’ll have to travel to Philadelphia or Baltimore to see a developmental pediatrician if we need one in the future.