Ben had a formal eye exam for the first time in his life about two weeks ago. For months we’d been noticing that his eyes tended to drift outward at times, but I couldn’t really tell which eye was the most problematic. (You can see it just a little bit in the photo above – look at the little points of light on his eyes). His pediatrician made the referral to our favorite tertiary care center, which is an hour’s drive from our home. We really loved the doctor who saw Ben. She was a wonderful lady who had obviously done some reading on CdLS, and knew what to look for.
She agrees that Ben has exotropia which is a kind of strabismus. He is also a little nearsighted. The good news is that he isn’t really favoring one eye over the other, the exotropia is intermittent, and he doesn’t need glasses yet. We’ll be patching alternating eyes for an hour each day, and rechecking his vision in about six months. Our doctor gave us a box of patches to get started but we promptly lost them. We have to order some new ones, and hopefully Ben won’t mind them too much.
After that we went to have Ben’s earmolds for his hearing aids resized. Jonny got to play with the squishy molding material.
Today we had Ben’s hearing tested again. We didn’t have an ABR, but rather they tested his ability to turn toward sound at different decibel levels and different frequencies while he was awake. He did very well, and certainly it seems that his hearing is not deteriorating at all. He won’t need to have another test for about 6 months.
In fact we don’t have ANY appointments scheduled at our favorite tertiary care center until April of next year!!! Let’s hope it stays that way!