An Ear Infection and Two Shots

Sick Isaac 

As I mentioned before, Isaac got an ear infection on Christmas Eve.  It started in the right ear, but the left quickly became infected too.  He was on Augmentin for 2 days, but still awoke the day after Christmas with a fever and ear pain.  We took him to the pediatrician yesterday morning.  She took a look at his ears, and decided to give him a very strong antibiotic: one called Rocephin.  Unfortunately, Rocephin only comes in IM or IV forms, and that means a shot.  In Isaac’s case it meant two shots since the dose was too large to give in just one injection. 

I told Isaac that he would get a shot, but he either didn’t hear me or didn’t believe me – he seemed to take the news very well.  That is, until the nurse actually came in with the needles.  He fought tooth and nail, and was very sad afterwards.  I felt so sorry for him.

He seems to be doing much better since then; no more fevers and he is not waking up screaming in the middle of the night.  He still has to finish the course of Augmentin.  We are trying to have him eat lots of yogurt to prevent him from getting diarrhea.  He has been quite chipper today from what Mark says, and feels well enough to play plenty of video games.   Hopefully he won’t need any more shots.


Merry Christmas!

Ben Asleep at Christmas

We had a very eventful Christmas this year.  Isaac slept from 7:30 pm last night until 7:30 am this morning and seemed OK when he awoke.  The kids were very excited to see that Santa had indeed come.

Isaac went to the Christmas stockings and brought Ben one of his new stuffed toys (a small jaguar), and Ben actually reached out to touch it and smiled!  It was the very first time he has ever done that, and we were very excited.  He did it several more times today.  That was the best Christmas present I could have received this year.

Ben reaching for toy

Then we unwrapped presents which took a surprisingly long time.   Ben got a brand new Bumbo seat which will help him to sit upright more.  He seems to like sitting in it for short periods, but gets annoyed when left in it for more than 15 mins or so.

 Ben in Bumbo Seat

Santa had even brought a Nintendo Wii and everyone enjoyed playing it:

 Wii 1Wii 2

Isaac’s fever returned about dinnertime.  He hasn’t eaten anything much today at all (I think just half a cookie) but is drinking plenty of fluids.  He’s been taking his antibiotics and Tylenol, and did seem to feel better later tonight.  He certainly perked up enough to play “The Legend of Zelda: Four Swords Adventure” with me tonight, so hopefully he will feel better tomorrow than he did today.

Cookies for Santa Claus

Sugary Cookies

Jonny and I made Christmas cookies for Santa this evening.  I hope he likes them with extra sugar!

Isaac is sick with an ear infection.  He was crying in pain and had a fever.  Fortunately we were able to get him started on an antibiotic….again.  He had only just finished a course of amoxicillin 2 or 3 days ago.  He slept for most of the evening on the couch and was not interested in TV, video games or Christmas cookies.  He even asked to go to bed at 7:30 pm and he is fast asleep now.  😦

I really hope he feels better in the morning.

Welcome, Lawrence and Rhoda!

 Lawrence, Rhoda and Boys

Yesterday evening my brother Lawrence and his girlfriend Rhoda arrived at our home after a very long and harrowing travel experience that started some 36 hours before.  Thankfully, they made it safe and sound and in one piece.  The boys immediately took to Rhoda.  They are still a little apprehensive about their Uncle Lawrence…although he gave them ice cream for dessert tonight so he might have won them over after all!

This evening Rhoda got the boys involved in sprucing up our rather drab Christmas stockings.  They had a blast.  Here is the final result:

New, Improved Christmas Stockings

In other news, I think we burned the motor out on Ben’s syringe pump.  This is the one that we use for his daytime feeds because they are relatively small-volume.  Of course, it is not only a weekend, but a holiday weekend at that, and we haven’t been able to reach anyone at the company to have it looked at.  So we will be using the Zevex Enteralite pump that we normally use for nighttime continuous feedings until we get things worked out, which is OK, I suppose.

Ben spent several hours out shopping with me today and was an angel!  I wore him in his front carrier, and he was very interested in everything that was going on at K-mart and the supermarket.  He stayed awake the entire time, and definitely appears tired out tonight.

Ben tasted some sweet potatoes today and loved them!

Ben Tasting Sweet Potatoes

Preschool Christmas Party and MIC-KEY Checkup

Jonny SingingJonny Reindeer

Jonny’s Christmas program at his preschool was last night.  He actually wasn’t clingy and willingly went backstage with his classmates!  When he spotted us in the audience he turned around, pointed and loudly proclaimed to his friends, “That’s my baby brother, Benjamin!”  He sang most of the songs.  He also got to be a reindeer.  The herd of reindeer wasn’t moving across the stage until they spotted a plate of cookies on the other side – then they took off!

Today was his Christmas party complete with Santa Claus.  He told Santa he wanted a statue for Christmas – whatever that means!  The kids exchanged gifts, ate sweets and generally had a good time.

Jonny & SantaJonny Preschool Party

We left directly from Jonny’s preschool party and took Ben to have a checkup for his MIC-KEY tube at the surgeon’s office with the nurse practitioner.  In contrast to the last time we were there, we didn’t have to wait at all.  At first the nurse was skeptical – she had just increased the tube size 6 weeks ago – but after she examined Ben she agreed that he did seem to have outgrown it already.  She therefore put in a longer tube (which seems to be the perfect fit for the time being), and cauterized some granulation tissue with silver nitrate.  Ben did NOT appreciate that at all, and Jonny felt very sorry for him.

Isaac was at school when all this was going on.  He was in extended care at school for only about 30 minutes, and he didn’t mind this time since one of his friends was there too.

Poor Ben is a little fussy tonight – he has had 2 difficult days in a row.  Hopefully his MIC will stop leaking and he’ll forget about the last 2 days, and will have a good first Christmas.

Ben Ready for Lunch

A Doctor Visit

Today we took Ben to see his pediatrician for a between-well-child-tube-feed-follow-up visit.  I scheduled this one because it seemed to us that his weight had plateaued after his surgery.  Overall, Ben has been doing well and tolerating his feeds.  We have slowed the nighttime rate down a bit because his MIC-KEY tube seems too tight and leaks a lot again these days.  Tomorrow we see the nurse practitioner at the surgeon’s office to see if she thinks he needs a longer tube.  Our bolus feeds are now up to 2 and a half ounces at a time which is wonderful!

Ben was 10 lbs 8.5 oz completely undressed!  He is at about the 50th percentile for weight for baby boys with CdLS, so he is back on track.   Our pediatrician says that the formula that they use to calculate feed requirements in tube fed kids might not apply at all to kids with CdLS, so he says we can just keep feeding Ben what he tolerates and make sure his weight gain is appropriate.  Sounds good to me!  

I think we’ll be moving up to Size 2 diapers in the very near future.  🙂

Ben got his 3rd Synagis shot and his 2nd flu shot today and is a little fussy this afternoon. 

Last night Isaac asked if Ben could stay with him in his bed while he went to sleep.  After a very few minutes, this is what they looked like:

Isaac & Ben Sleeping

Church Christmas Program

Isaac & Jonny at Church

Since Ben was born, I must confess our attendance at church has been spotty.  It just has.  I think that’s mainly because it’s taken us this long to adjust to getting all 3 kids ready on time on Sunday mornings, and taking Ben anywhere requires a fair amount of planning and equipment.  I’m not making excuses, but that’s the way it is these days.  

Apparently the children’s church has been working on a Christmas pageant over the last few weeks.  Last night, the children’s pastor left a message on our answering machine that Isaac would be singing with the big kids and Jonny would be a shepherd.  When we got there this morning, however, Jonny flatly refused to wear ANY sort of costume!  Isaac gladly filled in for him:

 Isaac as shepherd

The pageant was very cute and rather amusing.  Ben enjoyed all the music and singing; he did a little singing along himself!  (He has been “talking” alot these days.)  Maybe next year we can talk Jonny into participating!