My name is Karen. My husband Mark and I live in rural Central Pennsylvania. This blog is about my son Benjamin (aged 5 months) who has Cornelia de Lange Syndrome and his big brothers Isaac (6 years old) and Jonathan (3 years old). Hopefully this will be one way of staying in touch with distant family and friends (Hi Grandma!), as well as perhaps meeting new people who are dealing with some of the same issues that we are.
To learn more about Cornelia de Lange Syndrome please visit http://www.cdlsusa.org/