Hello World!


My name is Karen.  My husband Mark and I live in rural Central Pennsylvania.  This blog is about my son Benjamin (aged 5 months) who has Cornelia de Lange Syndrome and his big brothers Isaac (6 years old) and Jonathan (3 years old).  Hopefully this will be one way of staying in touch with distant family and friends (Hi Grandma!), as well as perhaps meeting new people who are dealing with some of the same issues that we are.

To learn more about Cornelia de Lange Syndrome please visit http://www.cdlsusa.org/


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: