Above: Ben minutes after birth
Above: Isaac visiting Ben at the NICU. Jonny wasn’t allowed in because he was too young and we were still in the RSV season.
Above: Mark & Ben in NICU
Above: Getting dressed and ready to come home! Ben was almost 2 weeks old and Mark was just getting trained on how to insert the NG tube. Ben would be fed via NG tube for 5 months.
Above: This was the day we finally brought Ben home. The older two were so excited!
Above: Isaac & Newborn Ben
Above: Jonny & Ben, 2 months old
Above: Ben a few days after his first birthday.
Above: Our family in June 2007 before Isaac’s kindergarten recital. Ben slept until we got inside, then was very interested in everything that was going on. He was also quite vocal!










December 14, 2006 at 7:42 am
hi im 14 and have just looked at the pics of your son. my mum works with people with physical and mental disibilities
so i relise how hard it must be for you. But your son is beautiful.
from Jade Chapman
age:14
December 14, 2006 at 6:32 pm
Thank you for your kind words, Jade. We think Ben is beautiful too!
- Karen.
December 21, 2006 at 5:04 pm
Gorgeous photos of a gorgeous boy and his brothers.
I laughed at the hat photo only because all the hats we had for Sonny were waaay to big. Even the tiniest one came down to his nose. Bless.
December 21, 2006 at 8:35 pm
Thanks Kelly! We STILL have problems finding Ben hats that fit right.
- Karen.
August 31, 2007 at 9:19 am
Just wanted to tell you as I was looking for an earmold website to help my friend draw for my upcoming book, I stumbled across your website and couldn’t help but noticed your BEAUTUFUL little boy, Ben. He’s really handsome. I hope you know that!?
I am orally deaf myself. I was born that way. Just recently and after being terribly sick with pneumonia 3 weeks ago, I decided to write a children’s numbers sign language book with cartoon characters, etc. There’s hasn’t been a book like this published yet and so I’ve been working real hard.
Also wanted to commented on your picture of Jonny holding Ben… what a Kodiak moment! You should have this blown up, it’s amazing.
If you need to talk or want more information about deafness or hearing loss, let me know. I may be able to help you.
Beautiful family too!
Linda H.
August 31, 2007 at 10:20 am
Thanks, Linda! We will have to keep an eye out for your book, sounds like a neat idea. We also love that photo of Jonny and Ben. It’s the best photo I have ever taken in my life. We have blown it up and it now adorns our living room wall.
September 9, 2007 at 12:48 am
hey amy here i am 20yrs of age and even though my mother (pam) has worked through the hole feild of disibility and that i have growen to respect the disabled for they are only another person just like u and me.
i have never seen such disibility like ur son has but as they u lern some thing new every day . im glad everything has worked out 4 u ur son is a hansom lil boy. let him know from me that i said hi and hope all go’s well in the future. ur friend amy p.s. chin up stay happy all the best to u all
January 10, 2008 at 9:25 am
Hi,
I cried when I read and saw photos of Ben he is so adorable and beautiful…little Ben is so lucky to have parents like you and brothers that loves him so much…
Please give ben a huge hug from me…
January 24, 2008 at 9:06 pm
Hiya am a 15 year old boy
and I came across your site it’s pretty cool ! I just wanna say you have very special boys and your really lucky to have a nice family
I just wished I had a little brother 8 or 7 years old to play with I would play with him every single day and be like a father to him
I just really wished I had a little brother !
January 24, 2008 at 9:14 pm
hi dears.
I saw the images.
when I read Isaac I remembered the prophet Isaac. I want to tell you the muslims believe prophet Isaac.and this name is using in Arabic names. in Arabic write إسحاق .
About your family, you have
a great & beautiful family .
God save you & bless you
all forever.
Ahmed
from Saudi Arabia.
April 10, 2008 at 7:04 pm
i was just looking at your sons picture an he is so cute. I whish you the best of luck with him he looks like hes going to be a great child when he grows up and it looks like you have lots of help so i whish you the best.
June 12, 2008 at 4:46 pm
I’m 9 years old and have two sisters with disabilities.I know how you feel.
July 30, 2008 at 2:32 am
Hello i found your blog by mistake, I just wanted to say thank you for sharing a little part of your lives and the great ordeal you going through. Good luck and stay strong!
From a single day of a 8 year old i wish your family a great summer!
-Greg
November 11, 2008 at 6:05 am
Hello!! your children are all so beautiful..
i have one little boy with cdls named Hayes he is 4 years old.
we are currently trying for our second child..and cant lie that im more than a little nervous!!
Ben is such a little cutie (reminds me a lot of Hayes!!), they are such happy smiley children arent they? hayes always knows how to make me smile.
take care of each other -x-
November 15, 2008 at 7:08 pm
Ben’s soooooooooooooooooooooooooooooooo cute!
December 2, 2008 at 10:56 pm
my name is jessica i was just browsing cdls because a friend of mine baby sits for a 6 yr old with it and i had never heard of it and since im in nursing school im curious about everything. your page literally brought me to tears. What a BEAUTIFUL family and such beautiful boys! i admire you for all that you do.
January 19, 2009 at 5:03 pm
please send me some more pics of Ben, I love him, so cute