Ben’s Preschool Evaluation and First IEP

Ben turns 3 at the end of April, so he will be transitioning from home-based early intervention to having his therapies in a preschool setting.  In our county, most kids with significant developmental or behavioral disabilities go to a designated “special needs school”.   I understand that a lot of parents and educators disagree with this approach, but we think it’s the right one for Ben at this time.

Earlier this month (the same week as our vehicular fiasco), he had a formal evaluation at the Center.  He first had his hearing and hearing aids checked briefly by their audiologist.  Ben is difficult to test using behavioral cues, so the audiologist was relieved to learn that he’ll be having a detailed ABR under general anesthesia tomorrow morning.

Then we all went to a different room, and we met all the therapists that Ben would be working with in school, as well as the school psychologist.  The physical therapist went first, and she put Ben down on the mat to watch him roll, crawl, sit up and stand with support.  We were pleased that we’ve already met Ben’s therapist – she filled in for our usual physical therapist a little over a year ago when she was on maternity leave.  Ben did very well.

Then they sat Ben in a little chair and tested how well he was able to manipulate objects with his hands and arms.  Ben sat very well and cooperated with all the tasks.   The school psychologist asked whether we wanted Ben’s IQ tested.  We consented, and she did her evaluation.  Through the entire process everyone asked us lots of questions about Ben’s routine, his likes/dislikes, special abilities, personality, and what our goals were for him.

We generated his IEP for the year, and read over and signed it.  Since the preschool operates year-round, Ben could technically start attending as soon as he turns three, but we all agreed to keep up home-based therapies a little longer; until August.  We asked questions about the preschool itself.  We learned that the classes are typically small (6-8 kids per teacher), kids work individually with the therapists at different times during the school day (or rather half-day), we are able to communicate back and forth with Ben’s teacher and therapists daily using a notebook, and at least once a month, his teacher will do a home visit to meet with us and discuss any concerns.  Ben will be continuing PT, OT (including working on oral feeds), ST, and will periodically meet with teachers for students with visual and hearing impairments.

The prospect of sending Ben to school fills us with anxiety, but at the moment we feel a little reassured after our IEP meeting.   For now it does appear that his educational needs will be met in this setting; we’ll see how things actually work in a few short months.

Overheard #2

Me, early one morning:  “Are you all ready for school?”

Isaac:  “No.  There’s one thing that’s missing.”

Me:  “What’s that?”

Isaac:  “Interest.”

Adjusting

This was my first week back to work after a too-short 8-week maternity leave.  Work is OK, but it certainly has been a challenge adjusting to life as a working mom of four.   And of course, Mark is adjusting to being the primary caregiver of four young boys!  We used to have a fairly predictable routine, but all that has changed with Nate’s birth and Jonny starting kindergarten.  The kids are having a little trouble adjusting to this new life too this week.

Isaac is doing great in second grade so far.  He is a good, obedient student, and we never have to worry about his behavior at school.  He seems to enjoy his class, his friends, and he seems to like his new teacher.  He and his friends play with these Bakugan figures at recess (apparently it’s the new cool toy for second graders), and he is always pestering us to buy more of them.

Isaac is playing AYSO soccer, and moved up to the under-10 team this fall.  He’s not too happy about the change, because the game has suddenly become more challenging.  He says he wants to quit the team, but of course we told him that he can’t until this fall season is over.  We have tried to remind him that he felt the same way when he started the under-8 team two years ago, and by the end of the second year he was really enjoying the game.

Jonny started all-day kindergarten, and it has definitely been a huge adjustment for him, since his preschool last year was just three mornings a week, and was decidedly unstructured.  Jonny is an active, gregarious child, so his teacher is already having issues with him talking in class when he shouldn’t be.  Poor Jonny.  I really want him to enjoy school, and I don’t want him to be labelled as a problem child in kindergarten.  Maybe we should have waited another year before starting school.  We’ll give it a month or two and see how he does.  I suppose we can always pull him out of kindergarten if it doesn’t work out.

Jonny is also playing soccer this fall, and he’s having a BLAST!

Ben and Nate are adjusting to each other.  They’ve been hanging out in their double stroller during soccer games and practice…

Adjusting isn’t always fun.  I can’t wait until we settle into a good NEW routine.

First Day of School

Tuesday morning was the official end of our summer vacation.  It was Jonny’s first day of kindergarten, and Isaac started second grade.  Surprisingly, the boys both got ready promptly.

Doesn’t Jonny look sooooo ready for kindergarten?  Of course Isaac realizes it’s just back to the same old routine so he doesn’t look nearly as thrilled.

Jonny did well for his first day.  To my relief, he walked back with the school secretary to his classroom without looking back.

This week the kindergarten class lets out at noon.  Jonny looked a little untidy after his first day, but happy.  Next week he’ll be going for full days.  I hope he continues to enjoy school even after the novelty has worn off.

In other news, Isaac has a brand new second grade teacher!  He really likes her.  I hope we get to meet her sometime soon.

And so the school year begins.  I’ve begun to notice that between schoolwork and after-school activities that time really flies when school is in session.  Before we know it, it will be summer again.

The Last Days of Summer

The month since Nate was born has gone by quickly. Along with the usual demands of taking care of a new baby, and Ben’s therapy sessions, the big boys have been home all summer. Even though this year we didn’t really do anything interesting or really fun, we still enjoyed each others’ company. And since I normally work full time, this summer was especially wonderful for me. I rarely have the opportunity to spend this much time with Mark and the kids.

In the last couple of weeks we have had some doctor and dentist visits:

Isaac and Jonny both had their regular dental checkups. We are ever so pleased to report that NEITHER ONE HAD ANY CAVITIES!!! That is especially a relief since Jonny has had FOUR cavities repaired in the last 6 months or so. We were so thrilled!

Then they both had their regular checkups at the pediatrician. They are both growing well and perfectly healthy. Jonny didn’t do too well with his vision screen at the pediatrician’s office. We had his vision checked yesterday at the optometrist and he doesn’t need glasses. Isaac needed a booster on his varicella vaccine, and poor Jonny got FOUR shots in preparation for entering kindergarten. They were both very sad to get shots, but they were troopers. I felt so sorry for them that we got them lots of Pokemon video games as rewards…but that’s another story.

Nate had his one month checkup. He is now gaining weight nicely, and was up to just shy of 10 lbs. He is healthy, and his only issue is a bad case of neonatal acne.

Ben had an audiology checkup to see if his hearing aids are at the right setting. They tried checking his hearing by using his behavioral responses to sound, but that wasn’t too helpful at the lower decibel levels. We therefore have to arrange an ABR under sedation to get a better idea of what he can actually hear. He hasn’t had an ABR since his first year of life, so I’m curious to see if his hearing has improved as he has grown, since this is something that can happen with kids with CdLS.

We also made him an appointment to see the pediatrician to talk about his feeds and some other issues. Ben seems to have gone through a growth spurt this summer! He is now almost 19 lbs, and we know he has grown an inch or two in height. So his tube feeds are going well, but we had been having some awful constipation problems. We are changing his formula to include some fiber, continuing his prune juice, and increasing his water intake, and already we are seeing an improvement.

This weekend we went to the open house for Isaac and Jonny’s school, except that it wasn’t. A teacher hasn’t yet been hired for Isaac’s 2nd grade class, and much to my disappointment, the classroom was locked so we couldn’t even see it. So we headed to the library instead. Ben had a great time getting out of the house – we haven’t been on too many outings this summer. That’s how boring we have been lately.

I am sad that summer is ending and the big kids will be back to school next week. I will miss them.

I do hope that next summer we can do some more interesting things than we did this year!

First Grade Report Card

For reasons that are unclear to me, in our school district, marking periods do not coincide with school breaks.  Isaac got his report card on Friday for the second marking period of the year that ended sometime last week.  He did very well:

His religion grades are OK, but we think they’re not great because he isn’t Catholic, and isn’t familiar with all those Catholic saints and customs.  Overall we were very pleased.

There were a couple of things that his teacher wants him to work on.  I am sorry to say that one of these was my  fault – tardies!!!:

Isn’t that terrible??? I really should get up earlier!  I promised Isaac I would do better.

If you look at the report card, there is one area that he does really well in, and that is written expression.  He has to write something almost every day for “Journal”.  If you ask him directly, he says he doesn’t enjoy this, but I think he does.

“I take care of my baby brothr Ben.  He likes me so much that one time he fell asleep in my lap.”

Preschool Halloween Party

This last Friday was Jonny’s Halloween party at preschool.  I had the day off, so I was lucky enough to be able to go along with Jonny, Mark and Ben.  Isaac asked us to give him the day off from school so he could come too, but we quickly nixed that idea.

Jonny went as Link from the “Legend of Zelda” series of Nintendo video games.  Yes, we are all Zelda geeks in this household (I’ll have to do a post about that sometime).  This costume is actually a hand-me-down; I’d actually made it for Isaac two years ago.  Ben got to wear his costume too:

 

It was a little warm, so we took it off after about 30 minutes.  The party was so much fun.  I enjoyed seeing all the other little kids all dressed up.

 

I’m not sure if I mentioned it before, but my mom was visiting from Trinidad these past two weeks.  We didn’t get to spend as much time together as I’d have liked because I worked just about every day she was here, but we all went out to dinner at our favorite Japanese Hibachi restaurant on Friday night.  The food was excellent, and the boys enjoyed the show.  We all had some green tea ice cream for dessert.  Isaac really loves that stuff.  Even Ben had a little taste and didn’t mind it too much even though it was cold.

Mom went back home today, and made it back to Trinidad safe and sound.  We can’t wait until her next visit.

Starting First Grade

 

Isaac started first grade today!  Doesn’t he look sharp in his crisp new uniform?

Yesterday afternoon we all went to an open house at his school.  He was able to meet his new teacher, drop off his school supplies, get familiar with his new classroom, and hang out briefly with some of his friends.  His new teacher seems like a very nice lady.  (AND she’s a big Lord of the Rings fan!)  There are so many neat things in his classroom: even a calendar to show who lost a tooth in which month.  All the same, Isaac is a little apprehensive about going back to school:

 

He’s a good student who behaves very well in school, but let’s face it.  Given the choice, he would much rather stay home and play video games all day.

Jonny and Ben also enjoyed open house.  Jonny took several photos of his own, but that’s for another post. 

Here are Isaac and Ben after Isaac got home from school today.  I guess they missed each other.

School’s Out…

 

…and the fun begins!  Mark is going to have his hands full with all three boys at home.

Isaac’s end-of-kindergarten concert was on Thursday night.  All three boys were dressed up, Auntie Aliyah came with us and we all had a great time.   Ben enjoyed the singing and made lots of happy sounds.  Even though Isaac was shy all week about “strutting his stuff”, he did just fine and had fun singing and dancing with all his friends.  We went out to eat at Fudrucker’s after the concert.

 

Today Auntie Aliyah is on a plane to Trinidad for summer vacation.  I wish I was going too!

The boys woke up deliriously happy today.  They had chocolate Lucky Charms for breakfast (I bought them for the first day of summer vacation) and ever since then they have been driving me crazy!  Already I am wishing we had a huge yard that I could send them out to run around burn off some of this energy!   

It’s going to be a long summer for Mark!

Preschool Christmas Party and MIC-KEY Checkup

Jonny’s Christmas program at his preschool was last night.  He actually wasn’t clingy and willingly went backstage with his classmates!  When he spotted us in the audience he turned around, pointed and loudly proclaimed to his friends, “That’s my baby brother, Benjamin!”  He sang most of the songs.  He also got to be a reindeer.  The herd of reindeer wasn’t moving across the stage until they spotted a plate of cookies on the other side – then they took off!

Today was his Christmas party complete with Santa Claus.  He told Santa he wanted a statue for Christmas – whatever that means!  The kids exchanged gifts, ate sweets and generally had a good time.

We left directly from Jonny’s preschool party and took Ben to have a checkup for his MIC-KEY tube at the surgeon’s office with the nurse practitioner.  In contrast to the last time we were there, we didn’t have to wait at all.  At first the nurse was skeptical – she had just increased the tube size 6 weeks ago – but after she examined Ben she agreed that he did seem to have outgrown it already.  She therefore put in a longer tube (which seems to be the perfect fit for the time being), and cauterized some granulation tissue with silver nitrate.  Ben did NOT appreciate that at all, and Jonny felt very sorry for him.

Isaac was at school when all this was going on.  He was in extended care at school for only about 30 minutes, and he didn’t mind this time since one of his friends was there too.

Poor Ben is a little fussy tonight – he has had 2 difficult days in a row.  Hopefully his MIC will stop leaking and he’ll forget about the last 2 days, and will have a good first Christmas.